National Cystic Fibrosis Awareness Month
Cystic fibrosis is a disorder that damages a person’s digestive tract, lungs, and other organs. This is an inherited disease that is caused by a defective gene. This means that this disorder can be passed from parent to child every generation. Unfortunately, there still is no cure for this disease and funding isn’t where it should be.
That’s why May was turned into National Cystic Fibrosis Awareness Month. This month aims to raise the public’s awareness about this disease, and consequently help future fundraising events. In our opinion, this month is one that people should observe. Not only so they can learn more about this disease, but so they can join in the fight against it.
The History Of National Cystic Fibrosis Awareness Month
This month was created in 1995 by the Cystic Fibrosis Foundation. Their purpose in creating this month was to not only raise the public’s consciousness about this disease but also to support people living with Cystic Fibrosis (CF) and to raise money for an eventual cure.
Some Important Facts About Cystic Fibrosis
Cystic Fibrosis is a serious progressive genetic disease and there’s currently no cure for it. There’s also not enough public awareness about this disease and the need for a cure. That’s why we’ve decided to list some of the facts we’ve uncovered about it below. Now everyone can have a better understanding of it and hopefully work towards finding a cure.
- Cystic Fibrosis is one of the most common fatal diseases in the U.S that are inherited.
- This disease happens when a person inherits a mutated copy of the Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) from each parent.
- There are over 2,000 CFTR mutations that have been linked to this disease.
- Cystic Fibrosis occurs in people of all races, but mainly in Caucasians.
- Life expectancy has been improving in the U.S for people with Cystic Fibrosis.
- In the U.S, there are now more adults than children with Cystic Fibrosis.
- People with Cystic Fibrosis have higher sodium and chloride levels, that is why a sweat test is recommended to diagnose CF.
- Screening for Cystic Fibrosis can be done on blood samples of children younger than a month old.
- The Cystic Fibrosis Foundation recommends that all patients with CF be seen in a specialized care center every 90-days for lung function and sputum tests.
- Most people with CF suffer from nutrient malabsorption.
Observing National Cystic Fibrosis Awareness Month
Everyone observing this month should attend a Cystic Fibrosis event near them. If there isn’t an event nearby, they can always attend one of the many virtual events online. People can also donate money directly to organizations that are looking for a cure for this disease.
And to help scientists raise the money they need to find a cure for this disease, we urge everyone to use the hashtag #CysticFibrosisAwarenessMonth on their social media posts.